11/18/11

 So Wednesday Brynnon had a Tonic Clonic seizure while awake. He was eating stood up, sat in a living room chair fell and started the clonic jerking. Unusual for Brynnon because he has never had a tonic clonic while awake. I am so thankful that he did not get hurt, a few more inches and he would have hit his head on the cedar chest… Thankful too that it was quick, as the last thing we need is further regression. He asked what happened… and he knew himself that things would have to change. For the last several months he has been riding the Scooter, his favorite thing to do. He loves that thing has a cool Motorcycle helmet to wear while riding… our next door neighbors chipped in and bought it for him to ride. It’s two wheeled… which means he would fall over if he had a seizure while riding it. He will not be able to drive the scooter for a while. Although it wouldn’t likely happen and he may stop if he has the aura he had before this seizure… there is just no way of being safe on it. I wish it had three wheels… or four.  Yeah, four wheels would be great! So of course when he woke up Thursday he started talking about the 3-wheeler that the neighbor gave him. Yeah, that has become his focus now, he wants to get that fixed. His poor brain has not exactly been up to par since Wednesday. Hope that he will start improving again, his behavior has been just awful too… but it wasn’t all that great last week either. So the protocol is if he seizes during the day and looses contentiousness give him a Klonopin… if he starts clustering or has anymore give him another Klonopin 6 hours later. If he has one longer than 2-3 minutes or has any back to back, take him to the nearest ER or call an ambulance. That first Klonopin he had did not make him go to sleep, he took it at 7:30, talked to the Neuro on call again at 1:30 AM and he was still up and rather hyper. Had him take the second one and his butt was asleep by 2:15! 

 I have been congested in my chest the last 2 days. I hope it will go away after I get some over the counter stuff… Abigail is being such a cutie… Gosh, she is getting so BIG. It is hard to believe it has been a year and a half since she was born so small… She has gotten taller these past few weeks, and actually looks like a little person now, not too much a baby anymore. What a blessing she has been in my life, I am so thankful to have her to hold… she is such a snuggle bug! Bought her a few things for her Hannukkah gift. A block sorter, wood train and some big blocks. Bought a magic set for Brynn or Brett too. Haven’t decided which one to give it to. Can only afford to spend about $30 for each person. Found Janice and Tera something that I think they will both like. Haven’t figured anything out for Bri and Brandon either. Figured I can just do a little for each one… 🙂 Wish there was a Dirt Cheap close by!

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